Alliance logo. Contains the words National Home of Your Own Alliance

Proceedings from a Gathering
of State Home of Your Own Coalitions

a two colored horizontal line, red on top, blue on bottom.

Discussions on Home Ownership
February 1997

Prepared on behalf of: National Home of Your Own Alliance Institute on Disability
University of New Hampshire
by Participants in the National Home of Your Own Alliance Meetings at the New Orleans Hilton Riverside in New Orleans, Louisiana on November 17-18, 1996

Table of Contents

Modular Homes As Affordable Home Ownership 4
The Impact of Home Ownership for People in Homes of Their OwnThe Research 6
Operating Funds for Home of Your Own Initiatives 8
Individual Support Funding 10
SSI Concerns 12
Traditionally Under-represented Groups 14
Mortgage Lending Process and Borrower Support 16

Home Repair

18

Structure of the Home of Your Own Programs Across the Country

20
Federal Policy Issues in Assisting People with Home Ownership: A Discussion with Bob Williams 22
How Are the Support Needs of People With Significant Disabilities Being Met 24
Barriers to Home Ownership 26

Using HUD Section 8 Certificates to Supplement Mortgages

28
How Independent Living Centers Can Be Involved in Home Ownership 30
National Home of Your Own Alliance Meeting Evaluation Compilation 32
List of Participants 36

Modular Homes As Affordable Home Ownership

Convener:

Carolyn Mansell, Georgia

Participants:


Lisa Tips

Texas
Larry A. Murphy Indiana
Patrick Brown Missouri
Nancy Verderber Missouri
Al Wiggins West Virginia

Issues

No one manufacturer makes accessible housing.

No one in the National Home of Your Own Alliance has knowledge to share around manufactured housing.

Manufactured housing is extremely costly to move to urban areas (relocating poles, service drops need to be 16 ft, need to check before planning move, etc.).

Manufactured housing is easiest to erect and transport on flat land.

It's difficult to find experts and difficult to get assistance with the issues around manufactured housing.

In reality, the group home and real estate sales people tell individuals with disabilities what they are allowed to choose.

Sometimes care givers have chosen less accessible housing to keep people with disabilities dependent.

HUD will not finance mobile homes.

HUD will finance manufactured homes.

Discussion

The discussion concerned the use of manufactured housing to create lower cost, barrier-free housing.

Questions

Are manufactured homes less expensive and/or comparable to custom built homes?

Who is really making the choices about an individual's housing?

Will HUD finance locally built (in factory) and the moving costs of modular homes?

Is there additional information available beyond the brochures from different manufacturers?

How do we eventually break free of grant dependence (chasing the money)?

Summary

There is strength in numbers.

Manufactured housing is best suited for rural and suburban sites.

Log homes use kits that can be assembled on site.

There are panel built homes that can be erected on site.

Precut housing, such as Jim Walter Homes, is another alternative to explore.

Financing can be made accessible as well as manufactured homes.

Some states use buy downs, plus substantial renovation monies, in order to access housing.

In West Virginia, the ARC has purchased housing. Afterwards, the person goes to the bank for a second mortgage. HUD buys the first mortgage from ARC and forgives the buyer after 20 years of rent-level mortgage payments. HUD writes off the balance at the end of 20 years.

Using manufactured housing can result in an immediate benefit to innumerable individuals without substantial supports who are independently attempting to accomplish home ownership.

Recommendations

Housing plans need to be on computer. This allows a person the ability to easily modify the plan of their home layout and arrange for customization.

The Center for Universal Design (CUD) is able to provide extensive information on manufactured housing.

Custom designed floor plans for accessible manufactured housing need to be developed before erecting a home. This will avoid having to retrofit the home later.

Work with the foundation contractor for site placement.

Interested parties should meet with manufactured homes associations.

The National Home of Your Own Alliance should work with the Center for Universal Design to educate the manufactured housing industry regarding the needs of people with disabilities. The emphasis should be on the potential market that is possible for the manufactured housing industry.

Increase opportunities for the use of sweat equity.

The National Home of Your Own Alliance should compile blueprints and serve as a resource center for floor plans and adaptive modifications. The Alliance should serve as a clearinghouse for direct information regarding affordable, accessible housing.

A web site should be established to gather and distribute information and resources directly to individuals interested in accessible manufactured housing.

Market the concept of manufacturing housing for people with disabilities to the Manufactured Home Associations as a means for them to comply with the Fair Housing Act.

Work with and lobby at disability expositions and assistive technology fairs to promote manufactured accessible housing.

The National Home of Your Own Alliance needs a subcommittee focusing on home planning assistance for individuals who are choosing different home-building or remodeling alternatives. The subcommittee could gather successful ideas, plans, blueprints, accessibility and financing resources, and networking contacts to distribute nationally through the Alliance web site.

Good housing alternatives should allow individuals freedom to change their support system.

Back to Table of Contents
a two colored horizontal line, red on top, blue on bottom.

The Impact of Home Ownership
for People in Homes of Their Own

The Research

Conveners:

Celia Feinstein and Robin Levine, Institute on Disabilities, Temple University

Participants:

Judith Snow Ontario, Canada
Miriam Podrazik Arizona
Kimberly Guin Alabama
Karen Burrison Pennsylvania
Deborah McCarty Indiana
Edward Alley-Willard Texas
Dick Lepore National Home of Your Own Alliance
Derek Dufresne Missouri
Sharon Lambert New Hampshire
Bobby Ball Idaho
Marcie Goldstein National Home of Your Own Alliance
John Lonick Arizona

Discussion

Research on the impact of home ownership for people with disabilities in homes of their own was discussed.

Questions

Is the project reaching people with the most significant disabilities?

Are caregivers giving the survey information to people?

Do people understand the importance of this research?

Are the people doing the counseling well versed in creative options?

Does the research help to identify the reasons why certain groups of people are participating and others are not?

Are people who have not responded to the Human Services Research Institute survey different from the people who have not responded to the Temple research?

Is there a profile of the participants in the project? Are people new to the system or have they been in the system for a long time? Is there a difference between these two groups in terms of degree of disability and inclusion?

How do we make housing affordable over the long haul for people with disabilities?

Are circles of support being created?

Issues

How do we get people to participate in the research?

Are we supporting people with significant disabilities through the project?

Many people that are currently renters are interested in the financial benefit of home ownership.

There is not enough long-term support within the states.

Staff assigned to state initiatives are not full time in this capacity. This promotes the breakdown of participation in the research. New states have learned from this experience and have boosted staffing.

Summary

People with recently acquired severe disabilities are finding out about Home of Your Own initiatives. These people are generally more included and integrated.

Timing of the research is important.

Living alone is the most expensive way to live. Determine the non negotiables and check for any realities of this situation.

Make compromises.

Share the research with people who do and do not have disabilities.

Single family homes can be isolating. Depending on where people live, increased amounts of integrated activities are not necessarily a result of home ownership.

People living in group homes are being discouraged from pursuing home ownership and providers are resistant to giving out detailed information.

Change at the Federal level is needed to get Medicaid money away from providers and directly to people.

Temple staff would be willing to give regional training.

Renting is not considered home ownership.

Recommendations

Do longitudinal research on people who have been home owners for several years, thus, allowing for the transition and settling in process.

State contact people should conduct follow up phone calls after people receive the request to participate research letters. This will help with literacy issues.

The National Home of Your Own Alliance Advisory Board can do follow up with State Coordinators and home owners to increase participation in the research.

Use graduates from Partners in Policymaking and other self advocates to get the information out to people.

Link up data collectors with Marcie Goldstein, Alliance Project Coordinator, for feedback on state experiences.

The National Home of Your Own Advisory Board should write up best practices for distribution to all state contact people.

The word needs to get out that no obstacle is too big. There is a need to get out the word on barriers and solutions.

Back to Table of Contents
a two colored horizontal line, red on top, blue on bottom.

Operating Funds
for Home of Your Own Initiatives

Convener:

Diane Sawyer, New Mexico

Participants:

Diana Myers Pennsylvania
Joe Wykowski Oregon
Kimberly Guin Alabama
Al Wiggins West Virginia
Kevin Smith West Virginia
Nancy Robertson Louisiana
Michael Renner Missouri
Carolyn Boland New Hampshire
Sharon Drake New Hampshire
Diane Sawyer New Mexico
Janice Navarre Washington
Russ Spearman Idaho
Debbie Berrey Idaho
Beth McArthur Connecticut
Rob Davies New York

Issues

It's important to guarantee longevity of the project goals beyond the demonstration phase.

Some of the options for funding at the conclusion of the Alliance project could be from the Developmental Disability Councils, foundations, and local city funding (general funds).

An example to consider is the New Hampshire Community Loan Fund. This fund manages the state initiative which is a funding partnership ($17,000 to $20,000 from the New Hampshire Community Loan Fund goes toward operational costs. $20,000 is provided by the Housing Finance Authority, $20,000 from the Developmental Disability Council, and $20,000 from the Division for Mental Health).

There is a concern regarding how funds are allocated within a grant. An example was given of a consultant in NY charging $65,000 for his services out of a HOME grant.

Another area to look at for funding over the long term is fund-raising. The example was given of one NY agency that asked 5 people to donate $50,000 and they received it!

The Pennsylvania ADA lawsuits have helped push home ownership for people with disabilities.

Discussion

Discussion centered around how to create a long-term funding base for operational costs of state initiatives after Alliance funding ends.

Questions

One of the basic questions of securing funding for an initiative (beyond the Alliance project and its funding) is whether the state coalition wants the initiative in their control or do they want to become independent as part of another non-profit, or do they want to form a non-profit?

The group wondered about foundation collaborative funding, and whether this would be a role for the Alliance to spearhead.

What really are operational/administrative costs and what are housing costs? It is important to distinguish between the two and to keep on track of operational/administrative costs.

Summary

Pennsylvania has 11 demonstration projects. They have funding from the Office of Mental Retardation and Developmental Disabilities ($50,000), Fannie Mae Foundation ($20,000), the Developmental Disability Council, and individual city governments.

Oregon uses lots of volunteer time. The Developmental Disability Council provides some funds. Also, there is some neighborhood money and some Community Development Block Grant funding.

Alabama, a new state in the Alliance, has support from the Developmental Disability Council.

West Virginia is also a new state. The ARC and Developmental Disability Council are involved in the initiative.

Louisiana started with the University Affiliated Program providing operational support. It now has involved the State Office for Citizens with Developmental Disabilities.

Missouri has Developmental Disability Council support for the project coordinator and the coordinator of futures planning, Department of Mental Health money is used to support individuals and the Alliance has provided some technical assistance money.

New Hampshire is utilizing the Housing Finance Authority, the Developmental Disability Council, the State Developmental Disabilities Agency, and the New Hampshire Community Home Loan Fund.

New Mexico is using foundation money, support from the city of Albuquerque, and is charging a fee for services. The operational budget for their non-profit corporation is projected at $179,000 a year.

Washington has monies from the Housing Trust Fund, the Developmental Disability Council, and a small amount from the Division of Developmental Disabilities. They are also working on establishing a demonstration project.

Idaho has funding from the Developmental Disability Council, the Developmental Disabilities State Agency, and the Alliance. It has also leveraged 8% of HOME Funds for operational costs (approximately $40,000).

Connecticut has funding from the Alliance, from Co-op Initiatives, Inc., the Developmental Disability Council, and is pursuing other grant funds.

New York has monies from the Developmental Disability Council, some reinvestment dollars, SONYMA loan money, the Office of Mental Retardation and Developmental Disabilities, and has staff working on HUD grants. Staff have also been trained in home ownership.

It was agreed that banks should be interested in providing funds directed at supporting people and Home of Your Own projects.

Recommendations

The group proposed that a dollar figure be assigned to the number of people receiving assistance.

Use 8% from HUD HOME funds or 20% from HUD CDBG funds for operational costs.

The initiative needs more local funding or grant writing for funds (perhaps using the University Affiliated Program grant writers).

New York will get 2% of HOME money, thereby, no longer being only a Home of Your Own project.

Recommended strategies:

leverage funds and other states for assistance;
increase the term beyond one year of funding;
demand fee for service; set up a satellite project statewide.

Develop a strategic structural plan to access different types of funding.

Back to Table of Contents
a two colored horizontal line, red on top, blue on bottom.

Individual Support Funding

Convener:

Michael Orzel, New York

Participants:

Anita Bradley New York
Michael Orzel New York
Debbie Shaffer Connecticut
Debbie Berrey Idaho
Marcia Zipkin Connecticut
Kevin Smith West Virginia
John William Lonick Arizona
Bobby Ball Idaho
Carolyn Boland New Hampshire
Wendy Orzel New York

Discussion

The group discussed strategies for increasing home ownership opportunities for individuals across the country. In particular, the discussion centered around ways of taking action politically. In addition, the group focused on increasing the involvement of people with disabilities in home ownership activities.

Summary

People with disabilities must be empowered to believe that they can effect change.

Issues

Public awareness and political activism are important issues in this process.

As a part of their Community Reinvestment Act (CRA) responsibilities, banks will have programs which invest in their communities.

Recommendations

Investigate where the money is going for large fund-raising events for United Cerebral Palsy Associations, and then redirect portions of the money to individual supports/services.

Increase Home and Community Based Services (HCBS) Waiver funding by getting people with disabilities out to talk with their legislators.

Organize a lobbying effort and provide transportation and incentives to encourage participation by people with disabilities.

Send out "things to think about" sheets/letters.

Write congressman and local representatives. Handwritten letters are preferable.

Investigate housing finance agency grant money.

Look into home furnishing/repair/hardware stores for donations and supplies (Home Depot, Good Will, Salvation Army, and Thrift Shops).

Use "Good Neighbor Days", "Habitat for Humanity", and "Paint the Town" as opportunities to get repairs done.

Contact local non-profit agencies and ask them to set aside money in a secure account for home repairs.

Solicit money from state lottery ticket sales.

Encourage home buyers to "set aside" a portion of their SSI checks for home repair emergencies.

Work with Social Security to change laws which penalize beneficiaries for saving money.

Work with Social Security to develop incentives for maintaining savings accounts.

Use Plans to Achieve Self Sufficiency (PASS) for home ownership through Social Security.

Call or visit state representatives.

Inquire about church activities/services.

Encourage strong advocates with disabilities to become political lobbyists/leaders.

Have a Home of Your Own representative make contact with legislators.

Open up communication lines between legislators and the disability community.

Collaborate with legislative aides and form relationships.

Talk to legislators about the long-term cost benefits of home ownership for people with disabilities.

Well in advance, work with home buyers to plan the transition process from complete services to minimal services.

Connect home buyers with Independent Living Centers.

Ask legislators to allow dollars to follow the person from a congregate care setting into their own home (not limit).

Hire our own lobbyist.

Recommend a cut in ICF/MR reimbursement.

Recommend a cap on the growth of group homes.

Use vacant/abandoned military housing as a low-cost alternative for housing.

Approach colleges and universities to solicit support for various activities surrounding home ownership. Colleges could establish a credit course on home ownership.

Encourage home owners to barter with their neighboring communities (i.e., a homeowner could baby-sit if their neighbor could help with the trash).

Continue to push for situations such as Medicaid Live-in-Care Provision. Expand it to include renting to others.

Utilize the media for public awareness (TV, Radio, etc.).

Invite media coverage on home closings.

Use community revitalization money.

Use nationwide clubs such as Kiwanis and Lions for public awareness and to seek services and supports.

Seek assistance from local neighborhood associations.

Tap into existing television programs which discuss home ownership to achieve public awareness.

Back to Table of Contents
a two colored horizontal line, red on top, blue on bottom.

SSI Concerns

Convener:

Anne Lane, Massachusetts

Participants:

Anne Lane Massachusetts
Yvonne Ventimiglia Missouri
Kevin Smith West Virginia
Jay Klein National Home of Your Own Alliance

Discussion

Discussion focused on resource limitation issues within SSI and other public benefits.

Summary

Ever-constant vigilance of support services is needed both during and after the purchase process to ensure that home ownership is a vehicle to control, and to maintain, not only home ownership on paper, but true home ownership.

Issues

The Plan to Achieve Self Sufficiency (PASS) program with SSI would be a method of assisting individuals to purchase their own home if they have a home-owned business.

With the first closing under the Fannie Mae HomeChoice program, the requirement that the purchaser maintain in her/his name a 2 month payment in a reserve account was discussed. This requirement could have adverse affects on SSI and Medicaid benefits. In Missouri, the Medicaid resource limitation is $1,000 which could equal the 2 months' reserve required by Fannie Mae.

Each state has different resource limitation amounts. This requirement has been circumvented by having all checks at the closing being made out to the lender or title company and not made out to the purchaser. Therefore, no funds are attributed to the person buying the home.

Recommendations

The National Home of Your Own Alliance found a passage in the SSI manual, which was not included in the regulations or the statues, that would allow the purchaser, who is an SSI recipient, to escrow funds in excess of the $2,000 resource limitation. This passage has been informally interpreted by attorneys and SSI staff. It is a priority for the Alliance to pursue a formal proposal to SSI addressing this issue and to get a formal interpretation of this provision.

Back to Table of Contents
a two colored horizontal line, red on top, blue on bottom.

Traditionally Under-represented Groups

Convener:

Risa Miller, Texas

Participants:

Jim Aegerter Indiana
Rebecca Ingram New Mexico
Eugene Walls Texas
Gilbert Roos Washington
Jim Aegerter Indiana
Maria Contino vPennsylvania

Discussion

Discussion centered around the struggles that various Home of Your Own projects and Developmental Disability Councils are experiencing with the inclusion of individuals who are from traditionally under-represented groups. New Mexico mentioned that they are a state comprised of a large percentage of Native Americans and Hispanics. Texas also has a high percentage (almost 30%) of its population reporting as Hispanic with some areas having Hispanics as the majority. Texas also has certain areas with concentrations of Asian Americans and African Americans. Indiana reports pockets of the state with high percentages of African Americans and Amish. Pennsylvania also reports pockets of Amish and a fair amount of Hispanics and Asian Americans.

In addition to racial/ethnic groups that are traditionally under-represented, all states reported a struggle with the inclusion of folks with a wide range of disabilities. Some states reported a high percentage of people with physical disabilities, but low percentage of participation of folks with psychiatric disabilities or cognitive disabilities on Developmental Disability Councils or Home of Your Own initiatives. States have varied experience with the split between the community of folks with developmental disabilities and folks with disabilities acquired later in life. Some Developmental Disability Councils "look the other way" yet others make clearer distinctions. One state reported some "bickering among folks with disabilities about who is better", (described as a disability hierarchy).

There was some discussion on groups that are traditionally under-represented that are "not to be talked about" possibly because of the separation of church and state or social stigma. Such differences as political affiliation, religion, and sexual orientation were among these groups. One state reported developing an Equal Opportunity Office-type demographics tool to track if they were being successful in reaching the numerous groups that have been traditionally under-represented.

Issues

Some Developmental Disability Councils have members appointed by the governor of the state, therefore, getting individuals from a wide range of backgrounds becomes a major political undertaking and depends on the current administration's commitment to diversity.

People with disabilities often do not even have the dream of home ownership (in large part due to the lack of that expectation and vision on behalf of social service providers and systems). It was discussed how systems tend to look at difference and cultures in numerous ways.

Many traditionally under-represented groups also had the experience of not "seeing" the American dream of home ownership as a possibility for them. A lot of the work the various states do on a daily basis is plant the dream.

A lengthy discussion was held on the Native American community and how land ownership is not a concept/value that is held in some tribes and that working to provide opportunities to whatever is the norm in that community for "home ownership" is the goal of Home of Your Own. This value of not owning land has created some major barriers working with HUD funding in New Mexico.

With some irony, it was discussed that there is a certain amount of arrogance and narcissism in believing that communities "need us".

Summary

States need to continue in the struggle and keep the dialogue going on this issue.

The group discussed how it is typically much easier to exclude/hate/fear a "group of people" rather than an individual (one-on-one basis). It was also mentioned that different individuals vary in their ability to tolerate difference in a supportive way.

It was agreed that it is impossible for states to chase after demographics. New Mexico reported initially trying to develop a hierarchy ranking individuals by need and that this was cumbersome and problematic. They moved from that experience to a first come, first serve basis.

Pennsylvania cautioned the first come, first serve basis may lead to serving individuals who are the easiest to assist leaving individuals with the most severe disabilities unserved or under-served. Pennsylvania does RFPs targeting folks with the most severe disabilities and in this way hopes to demonstrate that home ownership is a possibility for all folks with disabilities.

Indiana talked about working to connect individuals to their communities and building relationships slowly over time.

A number of states reported on the synergy that can arise in deteriorating neighborhoods when Home of Your Own assists an individual with disabilities purchase, rehabilitate, and maintain a home. Other neighbors begin to fix up their properties, start taking pride in their neighborhood, and become involved in the renovation of their community.

Recommendations

It was agreed that personal outreach one-to-one, developing of relationships was the most effective way of developing connections within communities that have been traditionally under-represented.

The group suggested that we acknowledge that our own ignorance may be a way to be able to outreach to communities not currently involved with Home of Your Own. And through acknowledging our own ignorance, we can work to get to know folks from the community who can be bridges between us and others in that community. It was also acknowledged that working to involve folks from a wide range of life experiences is a lot of work and an on-going process that needs a long-term commitment.

It was stated that the states had to begin "where they are" and struggle to improve on their inclusion of folks. During that struggle, staff, Developmental Disability Council members, and Home of Your Own steering committees need to work to ensure that services are delivered in a culturally-sensitive manner. One state gave an example of how the rehabilitation system was working with an individual from a Native American background in negotiating curb cuts in mobility training when the individual lived on a reservation that was without sidewalks and her home was without running water. Therefore, the training was completely out of the realm of her daily environment.

It was agreed that listening to the individuals with disabilities from traditionally under-represented groups is the foundation on which to build strong relationships with these communities.

The religious community was discussed as a resource for reaching the communities not currently taking part in Home of Your Own.

Other ideas on outreach include educating oneself on the group's history to learn how to interact and communicate in a manner that is culturally sensitive and, hopefully, more likely, to strengthen the relationship between Home of Your Own and the community.

Back to Table of Contents
a two colored horizontal line, red on top, blue on bottom.

Mortgage Lending Process and Borrower Support

Conveners:

Joy Horvath, Judith Snow, and Bobby Ball

Participants:

Joy Horvath Fannie Mae
Judith Snow Ontario, Canada
Bobby Ball Idaho
Michael Renner Missouri
Derrick Dufresne Missouri
Nancy Robertson Louisiana

Discussion

The discussion centered around how borrowers are supported through the process of applying for and closing on their mortgages. Coalition's understanding of mortgage applications and the underwriting process was also discussed.

Questions

Are we working with the borrowers who have the lowest income and need the most support? And, are we honoring their choices?

Are coalitions and support teams knowledgeable about the mortgage lending process so that they can help borrowers go through the process? Do they have established relationships with lenders to smooth the way?

How do coalitions find the resources to make borrower's choices a reality? (One of the major issues is the borrowers who do not want to live with other people.)

How are we doing regarding pre and post-purchase support and what resources are we using?

How well do we really listen to what a borrower wants and then integrate those desires with financial realities without assuming, up-front, that what the borrower wants is impossible?

Only four states have executed the Medicaid Live-in Care Provision but most have not used it to finance home ownership. The information is out there and the National Home of Your Own Alliance promotes its knowledge. Why aren't coalitions making it happen? (Is it lack of information or not pushing the state agency enough?)

Issues

Some state coalitions are still operating with representation/leadership only from within Developmental Disability or other disability communities. Mortgage finance, real estate, and housing development expertise is not being fully tapped.

Post-purchase supports for personal assistance and for home maintenance and repair need to be developed before a loan closes. The support needs to involve broader community resources rather than just the disability community.

The National Home of Your Own Alliance and the state coalitions need to do more to get the Medicaid Live-in Care Provision used as a source of mortgage financing.

Summary

Barriers are about income not disability.

Keep the ideal in mind, realities will press on us soon enough.

If we engage affordable housing experts, we can learn more about how to make the mortgages more affordable.

Missouri and Louisiana use a person-centered planning process to educate borrowers about the mortgage finance process. Missouri also walks a person through the entire loan process including the closing. (Louisiana is working with Neighborhood Housing Services to provide home maintenance education.)

Missouri works with borrowers to meet their ideal situation, but also tries to work out compromises. Missouri tries to work it out with each borrower and targets individuals who are below 50% of median income.

Louisiana spent six months making calls and visits to uncover financing resources including HUD CDBG funds and lenders that make portfolio loans at 1% below market rate.

Recommendations

Coalitions could include housing non-profits to help identify housing and teach support teams and borrowers about home maintenance and repair.

Break down barriers.

Every coalition should work with two or three "mission impossible" borrowers and make the process work.

Every coalition should work with the Medicaid Live-in Care Provision to finance a mortgage for two or three borrowers.

Every coalition should encourage the regular participation of lenders, realtors, and housing development professionals.

Lenders and realtors should be encouraged to be on personal support teams.

Coalitions should seek operating grants and other financial assistance from lenders, realtors, and the appraisal industry.

Coalitions should enlist the active participation and support (new resources) from the broader community to bring more expertise, creativity, and different types of resources to bear on all aspects of home ownership. It's a community issue and should include the community.

Back to Table of Contents
a two colored horizontal line, red on top, blue on bottom.

Home Repair

Convener:

Lisa Tips, Texas

Participants:

Yvonne Ventimiglia Missouri
Peter Sheridan New York

Recommendations

Funding needs to be identified for each category of maintenance.

Low income housing tax credits need to be investigated as a source of funding for maintenance needs.

A personal futures team needs to work with each individual. As situations come up, the team needs to work with the individual and the community to develop the resources (human and financial) to handle each maintenance need on a situational basis.

Investigate financing a reserve fund as part of the initial loan, either by increasing the amount of the loan over the purchase price, or extending the length of the loan.

Use publicity to get the community involved in supporting maintenance for the home owner.

Solicit companies to donate materials at cost in return for free advertising in newsletters and publications.

Get corporations to "adopt a home" for maintenance.

Develop a front-loaded, state-wide maintenance fund, either through benefactors or tax sources, that would enable the interest from the fund to be used for maintenance without depleting the principle. (An example is: $100,000 invested at 8.5% interest for five years would yield approximately $154,000; therefore, $54,000 of money would be available for maintenance use.)

Discussion

The discussion centered around different categories of repair: routine repairs, incidental repairs, and long term repairs.

Issues

Home grant funds could be used as a statewide maintenance reserve.

Funds could be raised from private foundations or corporations and set aside in a pool.

Summary

Concerns about maintenance funds should not be a barrier to home ownership.

Back to Table of Contents
a two colored horizontal line, red on top, blue on bottom.

Structure of the Home of Your Own Programs
Across the Country

Convener:

Diana Myers

Participants:

Robert Davies New York
Anne Lane Massachusetts
Carolyn Mansell Georgia
Beth McArthur Connecticut
Sarah Page Connecticut
Gilbert Roos Washington
Diane Sawyer New Mexico
Peter Sheridan New York
Russ Spearman Idaho
N. Eugene Walls Texas

Questions

How do we break down the different levels of responsibility, and begin to take pieces of different models from different states to make one model for our own state?

How do we bring real estate brokers to our side, and how do we educate them to what we are doing and why?

Does each state project have a subcommittee dealing directly with housing issues for individuals with disabilities?

A separate non-profit may attract a wider base of support and better opportunities for visibility of a home ownership project. But, with a new organization with limited resources, it may be harder to raise money. How does a new non-profit show they have a statewide focus?

Discussion

Discussion centered around identifying organizational alternatives for perpetuating state alliances and the strengths and weaknesses of each.

Issues

Funding for programs is usually broken down into two pieces: program financing and administration.

Some of the programs are part of another statewide entity. When the goals of the other entity change, this may affect the Home of Your Own project.

Being a part of another entity may guarantee long-term support, but the separate identity can be lost. There are also liability issues of the parent organization, turf issues, etc.

How does a new non-profit show they have a statewide focus?

Summary

What works for one program may not work for everyone. The main objective is how do we get each program up to speed in each state. There is no way to pick a single model because there may be limitations in one state that may not exist in another state.

New Hampshire, New Mexico, Idaho, Connecticut, and Massachusetts have taken a statewide approach; one central office works directly with individuals with disabilities throughout the state to take control of their housing.

Pennsylvania, Georgia, Texas, and Washington take the approach of providing technical assistance to regional and local implementers who work directly with individuals.

New York has implemented both of the above-mentioned models.

There is a need to describe and analyze all models being used in HOYO states.

Recommendations

Many recommendations were made for states to explore alternatives that take into account their unique history, politics, mission, and relationships with other state agencies.

One alternative is to connect with a state agency for long-term support (Department of Mental Retardation, Developmental Disability Council, University Affiliated Program, Housing Trusts, and Housing Authorities, etc.)

Try to get Developmental Disability agencies to enter Home of Your Own as a line item in their yearly budget.

For some states the Developmental Disability Councils or the University Affiliated Programs may not be the best alternative to carry out the Home of Your Own Program long-term. These organizations need to be able to step away from the project while still providing some limited support. The State Health and Welfare agency may be the more appropriate agency to take on Home of Your Own, but even this agency is not completely appropriate.

Another alternative is to incorporate a separate organization.

The best strategy for long term financial stability is to balance public and private money and forge a variety of collaborations with other organizations as needed.

A networking recommendation is to connect with the state real estate association for funding for technical assistance and training and to approach local banks for space, heat, utilities,etc., for program office needs.

The goal is to work ourselves into a different job because we have educated our communities and state staff regarding how to access loans without our support.

Back to Table of Contents
a two colored horizontal line, red on top, blue on bottom.

Federal Policy Issues
in Assisting People with Home Ownership:

A Discussion with Bob Williams

Convener:

Bob Williams, Commissioner
Administration on Developmental Disabilities

Participants:

Deborah McCarty Indiana
Larry A. Murphy Indiana
Patty Murphy Indiana
Jim Aegerter Indiana
Duane French Alaska
Joe Wykowski Oregon
Kim Guin Alabama
Marcie Goldstein National Home of Your Own Alliance

Summary

The good news is that the Alliance has the opportunity to "write the book". Duane French, the director of Vocational Rehabilitation in Alaska, discussed the use of Plans to Achieve Self Sufficiency (PASS) regarding home ownership. The position of the Alliance needs to be that it wants to help the Social Security Administration (SSA) process home ownership PASS Plans effectively and efficiently right from the start. The Alliance will provide Vocational Rehabilitation directors the opportunity to help solve a larger problem.

Commissioner Williams suggested that the Alliance create a short list of "targeted next steps" that they would like his help on. This needs to be completed early in 1997. When this list is generated, he will host a meeting for a small number of Alliance members to meet with SSA, RSA, and HUD leaders.

Discussion

Discussion centered around federal policy issues to assist people with home ownership. Commissioner Bob Williams discussed and responded to the group's issues and concerns and offered a federal perspective on both the barriers that were raised and solutions that were offered.

Issues

Vocational Rehabilitation has a role in supporting people to have accessible housing.

Recommendations

Section 8 funding should be able to be applied toward mortgages to increase home ownership and choice in affordable housing options.

SSI should be reformed. One suggestion was that there needs to be an increase in the resource allowance.

The utilization of PASS Plans to create stability in housing needs to be further developed. A strong, compelling rationale is needed to move in this direction.

Strategic plans in the Rehabilitation Act which reference home ownership need to developed. This could be accomplished through the regulatory process. For example, making housing available can mean assisting someone in home ownership.

The National Home of Your Own Alliance needs to be a part of Clinton's Home Partnership Initiative. The Alliance needs to make sure that it is a part of this.

University Affiliated Programs and foundations (i.e., DOLE and Robert Wood Johnson) need to have roles in housing.

Questions

Commissioner Williams opened the discussion with the question, what should be pushed to further develop home ownership opportunities?

Back to Table of Contents
a two colored horizontal line, red on top, blue on bottom.

How Are the Support Needs
of People With Significant Disabilities
Being Met

Convener:

Russ Spearman, Idaho

Participants:

Diana Myers Pennsylvania
Gilbert Roos Washington
Robert Davies New York
Sharon Drake New Hampshire

Discussion

Discussion centered on ways the various support needs of individuals are being met.

Questions

How do support needs get met informally and formally?

There are problems for states that do not have a structured system. There is an impact of caps on waivers. What is the impact of providing continuous services when no one person follows the individual with the disability all the way through the system?

What happens when the person with the disability does not like their provider?

New Jersey has just created a statewide trust. How did they do it? Whom do they target? What is the criteria, etc.?

Can we do reverse annuity mortgages? How?

The healthcare system is starting to be an important player in service development. What are states doing in this area?

What is the working relationship? Is it working?

Issues

The State of Pennsylvania does not have a seamless system for support. A person with a disability does not qualify for support services unless the individual is in "crisis", regardless of whether or not you are Medicaid eligible. Crisis = parents die and the person with a disability is now living alone. If this was the circumstance, then services would be provided. Pennsylvania has extensive waiting lists.

New York has extensive waiting lists for services and housing (in the Bronx area the waiting list has an approximate 14 year wait). New York only receives 1,800 new slots for Medicaid each year. 14,000 people need housing, 24,000 need family support services, and 30,000 need residential or day services.

Summary

NY currently has 90,000 active people they are working with. NY is trying to get non-disabled (college students, etc.) individuals to become roommates with people who are disabled at no cost (rent for service). The only way that someone receives one of the 1,800 new Medicaid slots each year is if you are severely disabled, you are acting out, or your family has money. NY is now creating pools of supplemental trusts - setting up a non-profit to become the trustee (fiduciary). Merrill Lynch is becoming a leader in assisting NY in home ownership opportunities. Merrill Lynch has set aside $100 Million: mortgages for agencies to develop community residences (acquisition and rehabilitation), cash management program for support agencies (investments, quarterly reports, etc.), and estate planning trust department (for agencies and individuals). These trusts do not affect third party payments. NY is developing two trust manuals. Also, they have a clearinghouse of information.

In Washington State: Gilbert Roos and his wife have been homeowners for about eight months. Forrest, who runs a support agency, checks in with the Roos' every so often to make sure that they are OK. Gilbert takes care of his own bills, his wife works, and he is looking for a part-time job.

Pennsylvania has model documents on home ownership that they will share.

Recommendations

The development of home ownership teams might be a successful way of eliminating some of the work from a Home of Your Own project person. Teams look at the issue, needs, and identify the supports for the person with the disability. Teams create a stop gap in services.

New Jersey has just created a statewide trust. The Alliance needs to get information from them about this and disseminate to the states.

Back to Table of Contents
a two colored horizontal line, red on top, blue on bottom.

Barriers to Home Ownership

Convener:

Marcie Goldstein, National Home of Your Own Alliance

Participants:

Judith Snow Ontario, Canada
Diane Sawyer New Mexico
Maria Contino Pennsylvania
Robin Levine Temple University
Celia Feinstein Temple University
Deborah McCarty Indiana
Larry Murphy Indiana
Yvonne Ventimiglia Missouri
Patty Murphy Indiana

Discussion

Barriers to home ownership were addressed.

Questions

What will happen to these initiatives in the long run?

What happens to the agencies as Home of Your Own and other funds dry up?

Summary

We need to educate the Realtors Association on circles, etc. Realtors need continuing education credits to stay licensed. This is the opportunity to reach realtors. Realtors may be interested in hiring our consultants to help them access people with disabilities. Similar education efforts and outreach need to be arranged for service provider associations (American Network of Community Options and Resources [ANCOR], etc.).

We need to demonstrate to the non-profit and the profit world that home ownership makes fiscal sense and is cost effective.

Issues

Some service providers have been reluctant to recommend home ownership to people with the most significant disabilities.

Individuals need to be encouraged to dream the dream of home ownership.

Cultural issues regarding home ownership need to be addressed. There doesn't have to be a title or ownership if that doesn't work culturally. Control is the issue.

People with disabilities are talking to each other rather than to bankers, real estate, and other community organizations.

People who are receiving services do not have support teams around them to help them figure out the real issues they face on a day-to-day basis.

Recommendations

The disability community is too much in charge of the process and education. We need realtors and bankers to do the educating and networking. Home of Your Own needs a person from the realty and banking arenas to work on the national level with all the Home of Your Own states.

We need roving consultant teams.

Back to Table of Contents
a two colored horizontal line, red on top, blue on bottom.

Using HUD Section 8 Certificates to Supplement Mortgages

Convener:

Anne Lane, Massachusetts

Participants:

Bob Liston Michigan
Rebecca Ingram New Mexico
Lisa Tips Texas
Forrest Wetzel Washington
Karen Burrison Pennsylvania

Discussion

Anne Lane explained the proposal that was submitted to HUD for Massachusetts Home of Your Own to use Section 8 certificates to supplement mortgage payments. The final draft of the Massachusetts proposal will be distributed through the Alliance to those interested.

Issues

Examine the tenure of Section 8 vouchers and certificates.

What will inspections entail.

Discuss Recapture Provisions.

Summary

Rebecca questioned the waiting lists and number of certificates distributed per state.

Karen explained her Section 8 certificate, its history, and how she'd like to use it for home ownership.

Back to Table of Contents
a two colored horizontal line, red on top, blue on bottom.

How Independent Living Centers Can Be Involved in Home Ownership

Convener:

Bob Bradley

Participants:

Pamela Dupree Louisiana
Iretta Scott Georgia
Marilyn Becker Georgia
Mike Leverett Georgia
Forrest Wetzel Washington
Debra McCarty Indiana

Discussion

The important things to consider when assisting an individual to buy a home was highlighted through a discussion of the benefits of purchasing a home.

The group discussed barriers that exist as well as recommendations for Independent Living Centers and others to assist and promote home ownership.

Summary

Independent Living Centers and other advocacy organizations need to get more involved in assisting people with disabilities to own their homes.

Service providers can be a major barrier to a person owning their home. Providers need to: listen to the ideas of advocates and people with disabilities; be flexible by creating individual budgets for the person that receives their services; understand that constant turn-over in personal assistants causes a lack of continuity for individuals; receive adequate compensation for the support they provide to individuals.

When an individual is a first time home buyer, the residence doesn't have to be the only home they will ever live in. People need to have the opportunity to make home improvements, sell their home as well as purchase and move to another home of their choice.

Personal futures planning is an important tool in the process of an individual owning a home.

Individuals with disabilities would much rather live in their own homes than in institutions and group homes.

People need the support of their friends in purchasing a home.

It is important to celebrate accomplishments with family, friends, and key facilitators.

We need to ensure that the individual's choice is respected.

When a person owns their own home they are able to:

have their own visitors and not have unwanted ones;

have choices and privacy respected; create incentives for family and friends to visit; make appointments or socialize without obtaining permission or signed approval.

More community activists and service coordinators are needed to assist people in purchasing homes.

Issues

Recapture provisions need to be created in order to assure that the houses that are purchased continue to remain affordable.

There are pluses in having your own home versus living in a group home.

Obtaining downpayment assistance can be a problem.

Questions

How can Independent Living Centers assist potential home buyers?

How can people with disabilities move toward home ownership?

What supports are needed for successful home ownership?

Recommendations

Create support groups of home owners with disabilities who would be willing to serve as mentors and advocates. The groups could be organized by an agency or group lead by people with disabilities such as People First or a Center for Independent Living. Individuals in these groups could serve as mentors and advocates to people who are in nursing homes, institutions, and group homes. Mentors could invite the person living in one of these places to their home for a night or two, thus, assisting the potential home buyer in understanding what it is like to live on one's own and the support that can be arranged.

Independent Living Centers can organize exhibitions for providers, individuals with disabilities (including potential home buyers), bankers, politicians, etc., to demonstrate how people have become tax paying, home owners.

Independent Living Centers can create a support group around each potential home buyer that includes some of the following individuals:

bankers
attorneys
family members
friends
building inspectors
community resource developers
facilitators
service providers
representatives from housing programs

Independent Living Centers can work to change the philosophy of service providers who are providing services to people in congregate facilities.

Independent Living Centers can work to shorten waiting lists for funding and supports.

Independent Living Centers can work on eliminating discrimination in terminology and policies.

Back to Table of Contents
a two colored horizontal line, red on top, blue on bottom.

National Home of Your Own Alliance
Meeting Evaluation Compilation

QUESTION 1: What are two or three aspects of the meeting that went well for you?


QUESTION 2: What, if anything, could have been done differently or better?


QUESTION 3: What are two or three things that you learned?


QUESTION 4: On a scale of 1 to 5, please rate the meeting overall by circling the number that best represents your view?

The Average was: 4.31

QUESTION 5: Any other comments or suggestions for future meetings:

Back to Table of Contents
a two colored horizontal line, red on top, blue on bottom.

Participants

Kimberly Guin
Montgomery, Alabama
Jim Aegerter
Indianapolis, Indiana
Nancy Verderber
St Louis, Missouri
Karen Burrison
Philadelphia, Pennsylvania
Elouise Woods
Tuscaloosa, Alabama
Deborah McCarty
Indianapolis, Indiana
Carolyn Boland
Bedford, New Hampshire
Maria Contino
Harrisburg, Pennsylvania
Duane French
Anchorage, Alaska
Larry Murphy
Arcadia, Indiana
Sharon Drake
Concord, New Hampshire
Celia Feinstein
Philadelphia, Pennsylvania
John William Lonick
Mesa, Arizona
Patty Murphy
Arcadia, Indiana
Marcie Goldstein
Durham, New Hampshire
Robin Levine
Philadelphia, Pennsylvania
Miriam Podrazik
Phoenix, Arizona
Charol Armand
New Orleans, Louisiana
Jay Klein
Durham, New Hampshire
Diana Myers
Glenside, Pennsylvania
Beth McArthur
Hartford, Connecticut
Bridgette Baker
Metarie, Louisiana
Sharon Lambert
Littleton, New Hampshire
Edward Alley-Willard
Austin, Texas
Sarah Page
Hartford, Connecticut
Bonnie Callahan
Baton Rouge, Louisiana
Rich Melanson
Durham, New Hampshire
Risa Miller
Austin, Texas
Debbie Shaffer
Unionville, Connecticut
Pamela Dupree
Kenner, Louisiana
Rebecca Ingram
Albuquerque, New Mexico
Lisa Tips
Austin, Texas
Marcia Zipkin
Hartford, Connecticut
Nancy Robertson
New Orleans, Louisiana
Diane Sawyer
Albuquerque, New Mexico
N Eugene Walls
Austin, Texas
Joy Horvath
Washington, DC
Anne Lane
Boston, Massachusetts
Anita Bradley
Albany, New York
Diane McCalmon
Everett, Washington
Bob Williams
Washington, DC
Dick Lepore
Eliot, Maine
Bob Bradley
Albany, New York
Janice Navarre
Olympia, Washington
Marilyn Becker
Atlanta, Georgia
Daryl Domke
Grand Rapids, Michigan
Robert Davies
Albany, New York
Gilbert Roos
Everett, Washington
Michael Leverett
Macon, Georgia
Bob Liston
Ann Arbor, Michigan
Michael Orzel
Troy, New York
Forrest Wetzel
Everett, Washington
Carolyn Mansell
Atlanta, Georgia
Patrick Brown
Kansas City, Missouri
Wendy Orzel
Troy, New York
Kevin Smith
Vienna, West Virginia
Iretta Scott
Atlanta, Georgia
Derrick Dufresne
Des Peres, Missouri
Peter Sheridan
Albany, New York
Al Wiggins
Clarksburg, West Virginia
Bobby Ball
Boise, Idaho
Clare Frederick
Kansas City, Missouri
Judith Snow
Toronto, Canada
Debbie Berrey
Boise, Idaho
Michael Renner
Jefferson City, Missouri
Bill Lynch
Salem, Oregon
Russ Spearman
Boise, Idaho
Yvonne Ventimiglia
Lee's Summit, Missouri
Joe Wykowski
Portland, Oregon
a two colored horizontal line, red on top, blue on bottom.

Back to Publications